Pheochromocytoma Support Foundation

  Shining the light on pheochromocytoma awareness through education, early detection, and support. 

Pheo vs. Fabulous is a blog authored by metastatic pheochromocytoma patient Miranda Simard.  

"Pheo VS Fabulous was born from the promise that I would never let this disease take away the one thing I could control, and I’ve labeled that my fabulous. When I became ill I realized how much we take for granted, and it started with how day to day tasks are so challenging when you’re battling an illness like pheochromocytoma cancer, that’s when I decided I wouldn’t let it that away from me. It’s more than just looking a certain way, it’s about BEING fabulous, strong, and positive when you have every reason not to be."

Ronny Allan is a wonderful advocate in the world of NET Cancer. We especially like him here, because he is so positive. We highly recommend you check out his blog, Living with Neuroendocrine Cancer. Below are some of our favorite articles from his site regarding a topic we don't see much of- neuroendocrine cancer and nutrition.

Blog 1- Vitamin and Mineral Challenges

Blog 2- Malabsorption

Alcohol- The Net Effect

                                          Talking about "IT". The pheochromocytoma.  

                                          Talking about "IT"

The Carcinoid Foundation said it best, "Neuroendocrine Tumors to Be Focus of February 2016 Issue of Hematology/Oncology Clinics"

So many good articles here, especially if you need some medical information.

Surgical Treatment of Small Bowel Neuroendocrine Tumors

Pheochromocytoma and Paraganglioma: Genetics, Diagnosis, and Treatment

Poorly Differentiated Neuroendocrine Tumors

Hepatic-Directed Therapies in Patients with Neuroendocrine Tumors

The following article is from the voice of rare disease in Europe, EURORDIS.

Camouflage in Cancer

                                       CBC Radio Canada recently put out a story regarding progress with cancer research.  

                                       Ground-Breaking Research in the Fight Against Cancer

Nasdaq Global Newswire released some exciting news from Sweden. "Immunicum AB (publ) today announced that the University Hospital in Uppsala has received clearance to initiate a clinical study in patients with neuroendocrine tumors with the Company's genetically modified adenovirus vector." You can read more about it here:

Immunicum’s Adenovirus Technology Gets Green Light for Clinical Study