Pheochromocytoma Support Foundation

  Shining the light on pheochromocytoma awareness through education, early detection, and support. 

Pheo Facts

  • 10% of cases are discovered incidentally, when the patient is undergoing diagnostics for other conditions.
  • Pheochromocytomas can be a component of certain genetic syndromes.
  • It is possible to have pheochromocytomas with no family history of them.
  • Pheochromocytomas are often associated with von Hippel-Lindau syndrome and neurofibromatosis. 
  • The incidence of pheochromocytoma is 2 to 8 per million persons per year. 

 

Pheochromocytoma is present in 0.1% to 1% of patients with hypertension,and it is present in approximately 5% of patients with incidentally discovered adrenal masses. The peak incidence occurs in the third to fifth decades of life; the average age at diagnosis is 24.9 years in hereditary cases and 43.9 years in sporadic cases. The incidence is equal between males and femalesSource